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Laatste nieuws

Living with Pompe disease: what do patients report?

Tuesday, July 14, 2026

What does Pompe disease really mean for patients' daily lives? The 2024 Pompe Survey Report offers a unique perspective.

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Podcast: Research is the key – Let’s Talk Business

Tuesday, July 14, 2026

The Prinses Beatrix Spierfonds funds, guides, and stimulates scientific research into muscle diseases, because it knows that scientific research is the only key to making all muscle diseases treatable in the future. Listen to the New Business Radio podcast Let’s Talk Business #634.

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Donate to the Spierfonds and make a difference

Tuesday, July 14, 2026

Every day, people with a muscle disease need our help. With your donation, you help make groundbreaking research possible, improve treatments, and give hope to thousands of people in the Netherlands. Discover why your contribution can have such an impact.